Fun day and sponsored walk to raise funds for Oli

LYME Regis Football Club’s youth section are hoping to raise funds for local youngster Oliver Apps, who suffers from complex disabilities.

Nine-year-old Oli (pictured left), who lives in Musbury but is a well-known member of the Street family in Lyme Regis, has a genetic mutation of the gene STXBP1 Chromosome 9q and suffers severe epilepsy.

The football club’s youth section are hosting a sponsored walk through Uplyme to the Davey Fort clubhouse in Charmouth Road, Lyme Regis, on Sunday, August 25, followed by a fun day to raise funds for a specialist chair to make things easier for Oli at home.

Oli’s mum Kelly Apps commented: “Oli is reliant on his loved ones to help him with even the most basic of tasks which we all take for granted everyday. In simple terms, the mutated gene plays a vital roll in the development of messages sent from the brain; Oli is not brain damaged, the messages just simply don’t get through.

“As well as his physical disabilities and inability to communicate, Oli is severely epileptic. On a bad day he can suffer more than 20 epileptic seizures of varying different kinds, and this can be heartbreaking for his family who have no way of helping him other than making him safe and comfortable.

“Oli loves nothing more than to sit in his beanbag watching his favourite films but it’s now too small for him and realistically too dangerous. There is little to no postural support meaning he is not really able to stay in it for long period of time due to the risk of other physical problems associated with undeveloped muscles and joints.

“Oli is therefore mainly restricted to staying in his wheelchair which is not comfortable and doesn’t allow him to rest the way he needs to on the worst days.

“We want to provide Oli with a P-Pod chair which are specially designed for people like Oli, together with accessories which will make it mobile and versatile for use. But as with all items disability labelled these come at a hefty price.

“Oli is a happy gentle boy and brings lots of love and fulfilment to all around him, and deserves this extra comfort in his life. His birthday is just over a week after this special event, what better present could we give him?”

The event at the football club will be held from 12noon to 6pm and will include a friendly football match between parents, a bouncy castle, face painting, music, a barbecue, bar, Pimm’s tent and other attractions for the whole family.

You can also support the appeal by donating via the website, where more than £900 towards the £3,000 cost of the specialist chair has already been raised.

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